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A Millennial with Chronic Illness

To be a millennial, it means that I must live at the intersection with violence, hatred and illness, all of which are chronic.  It also means that I turned five months old along with my esophageal reflux disease on September 11th, a day that will always have two meanings. To be a millennial with IBD, …

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The Complexities of Remission

As I walked out of the doctor's office at seven years old, I let out a huge sigh of relief.  I was in remission (symptom-free), marking the beginning of a new uphill battle. Remission had many unseen psychological, emotional and financial ramifications on me.  For one thing, my symptoms recur in nightmares.  In one dream, …

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Top 5 KILLER foods tha——please stop with the clickbait.

Clickbait titles--whether fact or fiction---can be very misleading.  And always overpromising. Ever since I started this IBD blog, these posts have started to appear on my feed as often as crabgrass does my front lawn.  Maybe Facebook thinks I am interested in wellness blogging.  Maybe wellness blogging is the new crabgrass of the Internet. In the …

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The Anatomy of the Ostomy

In light of ostomy awareness month, here are a couple quick facts about ostomies! There are three main types of ostomies: Ileostomies:  When a portion of the ileum (end of your small intestines) is brought through an opening in the abdomen to form a stoma, or an artificial opening.  The stoma bag collects the waste. …

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Review: Top 4 IBD Resources You Will Need

Whether you are curious about IBD or newly diagnosed, here are my favorite resources to keep in mind Crohn's and Colitis Foundation of America:  This site is an IBD patient’s best friend. The Crohn's and Colitis Foundation of America (CCFA) is an American non-profit that raises money for IBD cures, educates the general public about …

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4 Surprising Inflammatory Bowel Disease Complications that We Face

I’ve been writing a lot about my experience with IBD lately, but today I want to focus on the bare bones about IBD.  Many IBDers face complications that dramatically decrease the quality of our lives. A complication is an undesirable and unintended consequence of a certain disease or medication. Here are a few common IBD …

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4 things that I did to help me accept my diagnosis

Accepting my chronic illness meant that I would no longer see my disease as a flaw; rather, it is just another part of me that makes me unique.  This process was long and difficult. It took me about five years to fully accept my disease. Here’s what I have learned over those five years: I …

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This is the true value of representation.

One Sunday afternoon, I was mindlessly scrolling through Facebook when I came across  an American Eagle ad.  It was a lingerie campaign featuring models with ostomies and disabilities.  I almost fell out of my chair; most clothing companies never consider using models with "imperfections".   I usually see the same implicit message over and over again:  …

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I went to the hospital and this is what happened

The white glare of the fluorescent lights on the ceiling woke me up.  I tried to orient myself, but a knock on the door interrupted me.  A curtain blocked my view of the door.  On the other side of the curtain, a skinny blond boy was there for tube feeding training, like me. The jolly …

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How much do you know about IBD?