On Balancing Chronic Illness & Vlogging:  An Interview with Jenni Pettican

On Balancing Chronic Illness & Vlogging: An Interview with Jenni Pettican

Jenni Pettican is a 23-year-old chronic illness vlogger with Ehler Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). She is a drama student and radio presenter who shares her story of trying to face university and post-uni life with chronic illness. She also loves spreading awareness and helping her community.  Check out her channel! … Continue reading On Balancing Chronic Illness & Vlogging: An Interview with Jenni Pettican

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5 Unbeatable Self-Care Tips for the Chronically Ill

5 Unbeatable Self-Care Tips for the Chronically Ill

Why you need self-care In self-care, you re-prioritize rejuvenation over everything.  Unfortunately, doing that is near impossible if you have a chronic illness.  From endless doctor’s appointments to medication refills, you’re almost always on the move.  Resting is an essential part of chronic illness, as it can give you time to adjust your perspective.  It … Continue reading 5 Unbeatable Self-Care Tips for the Chronically Ill

22 Must-See Chronic Illness + Mental Health Blogs

22 Must-See Chronic Illness + Mental Health Blogs

Reading about how others experience chronic illness and mental health gives us inspiration, hope and insight. In fact, reading about others' experiences is often necessary in your journey with chronic illness because it puts your experience in conversation with theirs too, allowing you to learn new perspectives that hopefully you can apply to your life. … Continue reading 22 Must-See Chronic Illness + Mental Health Blogs

The Misconceptions We Face

Labels are hurtful especially if you are chronically ill, and it is important to be aware of the way you see us. You're a slow walker. I can guarantee you we are doing our best to not hold up the crowd behind us.  It hurts to walk sometimes, especially with certain conditions like multiple sclerosis or fibromyalgia.  So … Continue reading The Misconceptions We Face

5 Foolproof Ways to Deal with Dietary Restrictions

5 Foolproof Ways to Deal with Dietary Restrictions

I decided to write a post about Inflammatory Bowel Disease, since it's IBD month right now! Dietary restrictions are a normal part of life with IBD.  What frustrated me was the few choices I had. I felt trapped: my friends were able to eat whatever they wanted to.  They could grab something off the shelf … Continue reading 5 Foolproof Ways to Deal with Dietary Restrictions

Step Therapy:  A Hard Pill to Swallow

Step Therapy: A Hard Pill to Swallow

Step Therapy requires that patients take cheaper medications, but patients cannot change until they “fail.” Insurers claim that the fail first policy saves them money, but what about our health?  According to a 2015 American Gastroenterological Association study, over 10 Step Plans required medications with black box safety warnings (labels for drugs that have life-threatening side … Continue reading Step Therapy: A Hard Pill to Swallow

The Essential Guide to Nasogastric Tube Insertions

The Essential Guide to Nasogastric Tube Insertions

A feeding tube bypasses the oral route of nutrition.  These tubes are meant for people who cannot handle oral intake or who need supplemental nutrition.  One type is called the nasogastric (NG) tube, which is a flexible rubber or plastic tube that runs from the nose to the stomach.  Having used a tube for 9 … Continue reading The Essential Guide to Nasogastric Tube Insertions

Top Chronic Illness Books and Blogs of 2018

Top Chronic Illness Books and Blogs of 2018

Tis’ the season to get reading.  While you may not want to discuss chronic illness with your family members at the dinner table, this is the perfect time to take some time to reflect and rethink our perspectives. A Light in the Darkness by Lisa Sniderman.  Diagnosed with dermatomyositis (DM), a rare chronic autoimmune condition, … Continue reading Top Chronic Illness Books and Blogs of 2018

5 Indispensable Tips for Tube Feeders

5 Indispensable Tips for Tube Feeders

When you start tube feeding, those two items below become your best friends. You sleep with them every night and they occasionally bug you. From formula leakages to power outages, tube feeding can be a lot. Here are some tips to reduce your anxiety about tube feeding. (Because those accidents are going to happen. Trust … Continue reading 5 Indispensable Tips for Tube Feeders

For 10 years, T stood for tube feeding

For 10 years, T stood for tube feeding

My family and I were getting ready leave the airport after one long day and night of travel.  Outside the big glass window in front of me, people were getting into taxis and riding off. I wondered how many of the tourists were like me, who had to sleep with a rubber tube in his … Continue reading For 10 years, T stood for tube feeding