Step Therapy requires that patients take cheaper medications, but patients cannot change until they “fail.” Insurers claim that the fail first policy saves them money, but what about our health? According to a 2015 American Gastroenterological Association study, over 10 Step Plans required medications with black box safety warnings (labels for drugs that have life-threatening side … Continue reading Step Therapy: A Hard Pill to Swallow
Labels are hurtful especially if you are chronically ill, and it is important to be aware of the way you see us. You're a slow walker. I can guarantee you we are doing our best to not hold up the crowd behind us. It hurts to walk sometimes, especially with certain conditions like multiple sclerosis or fibromyalgia. So … Continue reading The Misconceptions We Face
A feeding tube bypasses the oral route of nutrition. These tubes are meant for people who cannot handle oral intake or who need supplemental nutrition. One type is called the nasogastric (NG) tube, which is a flexible rubber or plastic tube that runs from the nose to the stomach. Having used a tube for 9 … Continue reading The Essential Guide to Nasogastric Tube Insertions
Tis’ the season to get reading. While you may not want to discuss chronic illness with your family members at the dinner table, this is the perfect time to take some time to reflect and rethink our perspectives. A Light in the Darkness by Lisa Sniderman. Diagnosed with dermatomyositis (DM), a rare chronic autoimmune condition, … Continue reading Top Chronic Illness Books and Blogs of 2018
When you start tube feeding, those two items below become your best friends. You sleep with them every night and they occasionally bug you. From formula leakages to power outages, tube feeding can be a lot. Here are some tips to reduce your anxiety about tube feeding. (Because those accidents are going to happen. Trust … Continue reading 5 Indispensable Tips for Tube Feeders
My family and I were getting ready leave the airport after one long day and night of travel. Outside the big glass window in front of me, people were getting into taxis and riding off. I wondered how many of the tourists were like me, who had to sleep with a rubber tube in his … Continue reading For 10 years, T stood for tube feeding
To be a millennial with chronic illness, it means that I must live at the intersection of school shootings, anti-semitism, and chronic illness. Just as my IBD is in my DNA, so are Sandy Hook, Columbine, Tree of Life, and Marjory Stoneman. To be a millennial with IBD, it means that I must endure the … Continue reading A Millennial with Chronic Illness
Pain diaries are a cornerstone to any self-care chronic illness routine. The benefit of using these trackers that they record data for use later during doctor's appointments. One that I tried is Ouchie, available for download on the App Store and Play Store. It starts with an initial questionnaire (assesses pain levels, sources of pain, … Continue reading You Report, Ouchie Remembers: A Pain Tracker Review
As I walked out of the doctor’s office at seven years old, I let out a huge sigh of relief. I was in remission (symptom-free), marking the beginning of a new uphill battle. But what was I battling? Remission had many unseen psychological, emotional and financial ramifications on me. For one thing, my symptoms recur in nightmares. … Continue reading Not Cured, but Better?
Clickbait titles--whether fact or fiction---can be very misleading. And always overpromising. Ever since I started this IBD blog, these posts have started to appear on my feed as often as crabgrass does my front lawn. Maybe Facebook thinks I am interested in wellness blogging. Maybe wellness blogging is the new crabgrass of the Internet. In the … Continue reading Top 5 KILLER foods tha——please stop with the clickbait.