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A Millennial with Chronic Illness

To be a millennial with chronic illness, it means that I must live at the intersection of school shootings, anti-semitism, and chronic illness.  Just as my IBD is in my DNA, so are Sandy Hook, Columbine, Tree of Life, and Marjory Stoneman.  To be a millennial with IBD, it means that I must endure the …

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You Report, Ouchie Remembers: Reviewing the Latest Pain Tracker

Pain diaries are a cornerstone to any self-care chronic illness routine. The benefit of using these trackers that they record data for use later during doctor's appointments.  One that I tried is Ouchie, available for download on the App Store and Play Store.  It starts with an initial questionnaire (assesses pain levels, sources of pain, …

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The Complexities of Remission

As I walked out of the doctor's office at seven years old, I let out a huge sigh of relief.  I was in remission (symptom-free), marking the beginning of a new uphill battle. Remission had many unseen psychological, emotional and financial ramifications on me.  For one thing, my symptoms recur in nightmares.  In one dream, …

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Top 5 KILLER foods tha——please stop with the clickbait.

Clickbait titles--whether fact or fiction---can be very misleading.  And always overpromising. Ever since I started this IBD blog, these posts have started to appear on my feed as often as crabgrass does my front lawn.  Maybe Facebook thinks I am interested in wellness blogging.  Maybe wellness blogging is the new crabgrass of the Internet. In the …

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The Anatomy of the Ostomy

In light of ostomy awareness month, here are a couple quick facts about ostomies! There are three main types of ostomies: Ileostomies:  When a portion of the ileum (end of your small intestines) is brought through an opening in the abdomen to form a stoma, or an artificial opening.  The stoma bag collects the waste. …

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Review: Top 5 IBD and Chronic Illness Resources You Will Need

Whether you are curious about IBD or newly diagnosed, here are my favorite resources to keep in mind Crohn's and Colitis Foundation of America:  This site is an IBD patient’s best friend. The Crohn's and Colitis Foundation of America (CCFA) is an American non-profit that raises money for IBD cures, educates the general public about …

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4 Surprising Inflammatory Bowel Disease Complications that We Face

I’ve been writing a lot about my experience with IBD lately, but today I want to focus on the bare bones about IBD.  Many IBDers face complications that dramatically decrease the quality of our lives. A complication is an undesirable and unintended consequence of a certain disease or medication. Here are a few common IBD …

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4 things that I did to help me accept my diagnosis

Accepting my chronic illness meant that I would no longer see my disease as a flaw; rather, it is just another part of me that makes me unique.  This process was long and difficult. It took me about five years to fully accept my disease. Here’s what I have learned over those five years: I …

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This is the true value of representation.

One Sunday afternoon, I was mindlessly scrolling through Facebook when I came across  an American Eagle ad.  It was a lingerie campaign featuring models with ostomies and disabilities.  I almost fell out of my chair; most clothing companies never consider using models with "imperfections".   I usually see the same implicit message over and over again:  …

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I went to the hospital and this is what happened

The white glare of the fluorescent lights on the ceiling woke me up.  I tried to orient myself, but a knock on the door interrupted me.  A curtain blocked my view of the door.  On the other side of the curtain, a skinny blond boy was there for tube feeding training, like me. The jolly …

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